A Curefor Ellie.org

August 25, 2021

“A Cure for Ellie” is a registered non-profit organization dedicated to raising awareness and funds for research into LBSL, a progressive and very rare genetic disorder that affects the brain and spinal cord; most often developing in children, affecting their ability to walk, then even to stand and coordinate fine and gross motor skills.  We also provide information and support to families and individuals living with the disease.

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